http://www.recercat.cat:80/handle/2072/172886 Wed, 19 Jun 2013 16:18:01 GMT 2013-06-19T16:18:01Z http://www.recercat.cat:80/bitstream/id/35112/ http://www.recercat.cat:80/handle/2072/172886 http://www.recercat.cat:80/handle/2072/200500 El dret dels infants a participar: condicions i condicionants Fernández i Barrera, Josefina Aquest article sorgeix d'una tesi doctoral titulada Els infants com a ciutadans, defensada el 2005. L'estudi s'inscriu en el canvi de paradigma que ha representat la Convenció Internacional dels Drets de l'Infant (1989) al situar els infants com a subjectes de drets. Els objectius han estat identificar un fet complex com és la participació dels infants en la vida social; analitzar com els infants poden influir en la generació de noves formes de participació i en nous posicionaments socials, i relacionar aquesta participació dels infants amb la noció de ciutadania. Un altre element important a identificar ha estat la confrontació que aquesta participació planteja en el món dels adults. De fet, l'article fa una breu síntesi de la tesi doctoral en la seva totalitat i exposa amb major extensió una de les parts corresponents a l'anàlisi de les dades obtingudes en què es relaten les condicions i condicionants de la participació infantil. http://www.recercat.cat:80/handle/2072/200500 http://www.recercat.cat:80/handle/2072/183851 Family impact in intellectual disability, severe mental health disorders and mental health disorders in ID. A comparison Martorell, Almudena; Gutiérrez-Recacha, Pedro; Irazábal, Marcia; Marsà, Ferrán; García, Mercedes Family impact (or family burden) is a concept born in the field of mental health that has successfully been exported to the ambit of intellectual disability (ID). However, differences in family impact associated with severe mental health disorders (schizophrenia), to ID or to mental health problems in ID should be expected. Seventy-two adults with intellectual disability clients of the Carmen Pardo-Valcarce Foundation's sheltered workshops and vocational employment programmes in Madrid (Spain), 203 adults diagnosed with schizophrenia from four Spanish Community Mental Health Services (Barcelona, Madrid, Granada and Navarra) and 90 adults with mental health problems in ID (MH-ID) from the Parc Sanitari Sant Joan de Déu Health Care Site in Sant Boi de Llobregat, Barcelona (Spain) were asked to participate in the present study along with their main caregivers. Family impact experienced by caregivers was assessed with the ECFOS-II/SOFBI-II scale (Entrevista de Carga Familiar Objetiva y Subjetiva/Objective and Subjective Family Burden Interview). In global terms, results showed that the higher family impact was found between caregivers to people with MH-ID. The interaction of both conditions (ID and mental health problems) results in a higher degree of burden on families than when both conditions are presented separately. There was also an impact in caregivers to people with schizophrenia, this impact being higher than the one detected in caregivers to people with intellectual disability. Needs of caregivers to people with disability should be addressed specifically in order to effectively support families. http://www.recercat.cat:80/handle/2072/183851 http://www.recercat.cat:80/handle/2072/183850 Family burden related to clinical and functional variables of people with intellectual disability with and without a mental disorder Irazábal, Marcia; Marsà, Ferrán; García, Mercedes; Gutiérrez-Recacha, Pedro; Martorell, Almudena; Salvador Carulla, Luis; Ochoa, S. Few studies have been found that to assess the factors that explain higher levels of familyburden in adults with intellectualdisability (ID) and intellectualdisability and mental disorders (ID-MD). The aims of this study were to assess familyburden in people with ID and ID-MD and to determine which sociodemographic, clinical and functionaldisabilityvariables account for familyburden. The sample is composed of pairs of 203 participants with disability and their caregivers, of which 33.5% are caregivers of people with ID and 66.5% of ID-MD. Assessments were performed using scales of clinical and functionaldisability as the following instruments: Weschler Adult Intelligence Scale-III (WAIS-III), Inventory for Client and Agency Planning (ICAP), Psychiatric Assessment Schedule for Adults with Development Disability (PAS-ADD checklist), Disability Assessment Schedule of the World Health Organization (WHO-DAS-II) and familyburden (Subjective and Objective FamilyBurden Inventory - SOFBI/ECFOS-II). People with ID-MD presented higher levels of functionaldisability than those with ID only. Higher levels of familyburden were related to higher functionaldisability in all the areas (p & 0.006-0.001), lower intelligence quotient (p & 0.001), diagnosis of ID-MD (p & 0.001) and presence of organic, affective, psychotic and behavioral disorders (p & 0.001). Stepwise multiple regression showed that behavioral problems, affective and psychotic disorder, disability in participation in society, disability in personal care and presence of ID-MD explained more than 61% of the variance in familyburden. An integrated approach using effective multidimensional interventions is essential for both people with ID and ID-MD and their caregivers in order to reduce familyburden. http://www.recercat.cat:80/handle/2072/183850 http://www.recercat.cat:80/handle/2072/179495 Cuidados Paliativos en oncología Tuca Rodríguez, Albert; Schröeder i Pujol, Marta; Novellas Aguirre, Ana Los cuidados paliativos atienden a personas afectadas de enfermedades avanzadas, sin posibilidad de tratamientos específicos y con expectativas de vida limitadas. La percepción vivida por estos enfermos está determinada por la presencia de síntomas múltiples y complejos, expresados en todas las dimensiones humanas (física, psicológica y social), y por la amenaza explícita o implícita de una muerte próxima. Los objetivos planteados por un equipo interdisciplinar son el control de síntornas, el soporte psicológico y la asesoría social. http://www.recercat.cat:80/handle/2072/179495